03. Surviving and Thriving When You have a Child With Extra Needs

Speakers: Kelly Frey Luhn and Jason Luhn

*These speakers will be presenting virtually.
**This session is available for in person and virtual attendance.

We are normal, everyday parents raising an extraordinary 12 year old child.  Like so many other parents, the stress is unbearable at times.  Physically you are pushed to the brink.  Mentally you are drained.  Emotionally you are exhausted.  We hope to have an open and honest dialogue about the challenges of parenting a child with extra needs, how this has changed us personally and how it has affected our marriage.  We also hope to answer questions from others and provide a safe place to talk and exchange ideas and support.  Studies show that divorce rates among couples with special needs children is at a startling 80%.  Caregiver burnout is at an all time high after the pandemic.  More than ever, we need help and support and resources and ultimately human contact to know that we are not alone.  Join us for a frank discussion, get your questions ready and any information that you would like to share.    We can all learn together!

Credits: Act 48, ASHA

Audience: Special Education Teachers; Teachers who work with students who are blind or visually impaired; Teachers who work with students with hearing loss; Teachers who work with students who are Deaf-Blind; Teachers/other professionals who work with students who have sustained traumatic brain injury; Speech therapists; General Education Teachers; Supervisors/Administrators; Assistive Technology Specialists; Occupational Therapists and/or Physical Therapists; Orientation and Mobility Specialists; School Counselors and/or School Psychologists; Parents, Guardians, Family Members; Paraprofessionals

Speakers’ Bio: 

7 weeks into the pregnancy of their first child, Jason and Kelly were given the news that their child had a severe brain malformation and most likely would not survive birth. Fast forward 12 years, and today, they are parents to a vivacious, non-verbal, 5 foot 8, 145 pound son named Bennett, who was born with multiple medical issues including Intractable Epilepsy and Dandy Walker Malformation. Bennett does require full care, uses a wheelchair and the daily challenges and physical demands are many, but Jason and Kelly are determined to live everyday to the fullest and not only survive, but thrive as a couple and a family...no matter what. Bennett has an amazing ten year old sister, Marena and two dogs, 5 cats and a beta fish named Jaws. After more than 20 years of active duty, Jason recently retired as a KC-135 pilot from the 171st Air Refueling Wing and Kelly continues to anchor the morning news on WTAE-TV from 4:30-7 am.