Supports for Families

COVID19FamilySmall.jpg Supports for Families


Office Hours:

Please note office hours are intended to provide real-time technical assistance to educators, caregivers, parents, and students. Technical assistance is not legal advice. Specific questions concerning a student’s special education program or the laws relating to the provision of services in a child’s IEP (Individualized Educational Program) should be directed to ConsultLine at 800-879-2301.

 

Contact Molly Black via email at mblack@pattan.net or by phone at (412) 719-9370 or Patti McGowan via email at pmcgowan@pattan.net or by phone at (724) 864-2553 to schedule an appointment.
The goal for these office hours is to offer support/troubleshooting, idea sharing, and discussion opportunities, so please bring your questions and ideas.
 
Contacts for Questions: Please feel free to contact any member of the Deaf-Blind Initiative/PA Deaf-Blind Project with questions.
 
Family Consultants
Molly Black at
 mblack@pattan.net
Patti McGowan at pmcgowan@pattan.net 
 
Education Consultants
PaTTAN Pittsburgh: 
Jennifer Craig at
 jcraig@pattan.net
Greg Lazur at glazur@pattan.net
 
PaTTAN Harrisburg:
Sue Ann Houser at
 shouser@pattan.net

 PaTTAN East:
Tara Kelly at 
tkelly@pattan.net 
Jennifer Edgar at jedgar@pattan.net

Pre-Recorded Trainings:

Archived PaTTAN Trainings and Webinars on Deaf-Blindness: Link to PaTTAN Archived Webinars on Deaf-Blindness
 
Helen Keller National Center (HKNC) is providing free online courses through the end of August 2020. Continuing Education Credits (CEUs) are offered with many of their courses. Contact your regional representative Cynthia L. Ingraham, EdD (Cynthia.Ingraham@hknc.org)  or Carrie Benson (Carrie.Benson@hknc.org) to obtain a coupon code for the course you would like to take. 

 

Live Trainings:

HUNE is hosting Andy’s Café Virtual Meeting - information sharing session: Where to find COVID-19 information, Educational Resources and more in SPANISH!

When: Every Wednesday from April 1 to June 17, 2020

Time: 12:00 pm

Click here for registration

Flyer in English y en Español

 
Resources


Families can join the Deaf-Blind listserv to get ongoing updates regarding resources, training opportunities, etc.; please contact Molly Black at mblack@pattan.net or Patti McGowan at pmcgowan@pattan.net to be added to the listserv.
 
Families should connect with the Pennsylvania Partnership for the Deafblind’s website at www.papdb.org or Facebook page if they haven’t already. PPDB offers family supports, resource sharing, Facebook group with idea sharing, etc.

NCDB Ideas for Activities at Home During COVID-19
 
At-Home Resources from CHARGE Syndrome Foundation
 
National Association for the Deaf Medical Communication Access Information
 
How Do I Talk With My Child With Deafblindness About COVID-19 (from the Philip Rock Center): How Do I Talk To My Child With Deafblindness About COVID-19 Document
 
Resources to Teach Hand Washing to Children Who are DeafBlind (from the Philip Rock Center): Resources to Teach Hand Washing to Children Who are Deafblind Document 
 
COVID-19 Social Story from Easterseals and IL Autism Partnership (English): Link to COVID-19 Social Story in English
 
COVID-19 Social Story from Easterseals and IL Autism Partnership (Spanish): Link to COVID-19 Social Story in Spanish (En Español)

HUNE COVID-19 Information and Resources
 
Literacy for Children with Combined Vision and Hearing Loss: Link to Literacy Resources at NCDB
 
QR Code Repository and links to ASL Stories that are signed, animated, and captioned in English: Link to ASL Stories
 
Paths to Literacy is offering students with visual impairments who do not have full access to online curriculum, supplemental activities, or resources during the COVID-19 pandemic volunteer-based support for access. The idea of this project is to connect students and their families to volunteers who have the skills and desire to provide this support during this unprecedented time of need: Link to Paths to Literacy
 
Talking to Kids About the Hard Stuff: Adapted from the (California) Fresno County Department of Behavioral Health
 
  1. Identify what they already know – “What’s your take on this?”
  2. Be honest and clear – “This is hard, but we will get through this.
  3. Admit when you don’t know – “ I don’t know.  Let’s see what we can find out together.”
  4. Reassure them you’re available – “I’m here if you want to talk or vent.” 
Resources from Ohio Center for Deaf-Blind Education

Resources for Providing TA During the COVID-19 Pandemic 
-The purpose of this page is to organize useful, relevant resources from state deaf-blind projects, the National Center on Deaf-Blindness (NCDB), and other sources to inform distance TA while schools are closed during the COVID-19 pandemic. 

Resource List from PA Deaf-Blind Project

Pennsylvania Deaf-Blind Project
 
Pennsylvania Training and Technical Assistance Network (PaTTAN)
 
American Association of the DeafBlind (AADB)
 
American Foundation for the Blind (AFB)
 
American Printing House for the Blind (APH)
 
Cornelia de Lange Syndrome Foundation, Inc. (CdLS)
 
CHARGE Syndrome Foundation
 
IDEA Definition of Deaf-Blindness
 
Family Connect
 
Family Connections for Language and Learning
 
Families to the Max: Pennsylvania Statewide Family Network
 
Foundation Fighting Blindness
 
Global Foundation for Peroxisomal Disorders (GFPD)
 
Hands and Voices
 
Helen Keller National Center (HKNC)
 
HUNE
 
Intervener Website
 
National Center Deaf-Blindness (NCDB)
 
National Deaf-Blind Equipment Distribution Program (NDBEDP)
 
PA Deaf-Blind Equipment Distribution Program
 
National Family Association for Deaf-Blind (NFADB)
 
National Federation of the Blind (NFB)
 
National Organization for Rare Disorders (NORD)

PA ABLE
 
Parent Education Advocacy & Leadership Training Center (PEAL)
 
PA Family Network-Vision for Equality
 
Parent to Parent
 
Pennsylvania Department of Labor and Industry Bureau of Blindness and Visual Services (BBVS)
 
Pennsylvania Department of Public Welfare, Early Intervention Services
 
Pennsylvania Elks Home Service Program
 
Pennsylvania Office of Developmental Programs (ODP)

Pennsylvania Office for the Deaf and Hard of Hearing (ODHH)
 
Pennsylvania Partnership for the Deafblind (PPDB)
 
Pennsylvania Secondary Transition Guide
 
Perkins School for the Blind
 
Perkins School for the Blind - Hayes Research Library
 
Perkins Wonder Baby
 
Special Kids Network
 
Usher Syndrome Coalition
 
Usher Syndrome Coalition Registry
 
Usher Syndrome Society