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EVERETT DEIBLER: ...like we said we're from the Pennsylvania Youth Leadership Network and we're here today to talk to you about the History of...
GABE SMAGLIK: Hey.
GABE SMAGLIK: CIL.
EVERETT DEIBLER: ...Centers for Independent Living. And like I said Gabe and I both work at what's known as a CIL or CIL, right?
EVERETT DEIBLER: And Gabe said he works at the Anthracite Region Center for Independent Living and I work at the Lehigh Valley Center for Independent Living in Allentown, Pennsylvania. Gabe, where is
GABE SMAGLIK: Yes.
your site located?
GABE SMAGLIK: Well, I volunteer and it's from Hazleton.
EVERETT DEIBLER: Sweet. Okay. And we also said that we're a part of PYLN. So, Gabe, do you want to tell the people what that -- what PYLN is?
GABE SMAGLIK: PYLN is Pennsylvania Youth Leadership Network. It's youth-led, youth-driven, run by young adults, driven by young adults.
EVERETT DEIBLER: Uh-hmm.
GABE SMAGLIK: With disabilities. Formed in 2005 by PaTTAN, Pennsylvania Training and Technical Assistance Network...
EVERETT DEIBLER: Uh-hmm.
GABE SMAGLIK: ...with young adults across PA ages 16 to 18.
EVERETT DEIBLER: Twenty-eight.
GABE SMAGLIK: Twenty -- oh, man.
EVERETT DEIBLER: It's all right. It's okay.
GABE SMAGLIK: I'm not 28. Cross disability organization.
EVERETT DEIBLER: And the mean thing about the word cross disability, it basically means that -- remember, when everything you see here was done by young people, for young people, that's what
youth-led, youth-driven means and with cross disability when we -- we work with anybody with any type of disability and that people could be a part our organization regardless of what kind of
disability they have. For me, you can't really tell but I do use a wheelchair, you can't see it on the screen unless I back up and do some crazy wheelie, but Gabe, what's you disability?
GABE SMAGLIK: My disability is bipolar anxiety disorder.
EVERETT DEIBLER: Right. And so that means that Gabe's disability is a hidden disability, it's one that we can't see. So, we have people with learning disabilities, maybe you have a disability in Math,
reading, we have people that use wheelchairs, people that use ventilators, people that -- the whole point is we work with anybody and we're all young people and we make stuff for the use of young
people. So, what are we going to talk about today? We're going to look at the History of the Independent Living Movement and we're going to look at the ADA Generation. Gabe, what is the ADA?
GABE SMAGLIK: This stands for Americans with Disabilities Act.
EVERETT DEIBLER: And then we're going to look at a Center for Independent Living and what is that and kind of explain to you why is that stuff so important for young people with disabilities to know
about what a CIL or a Center for Independent Living does. And then you're going to have time to talk to Gabe and ask him questions live because right now we are recording this in a hotel in
Pittsburgh Theater. We were just at a school today doing an advance so we thought, "Hey, why not record a webinar for everyone to see.
GABE SMAGLIK: Why not? Before we begin, keep in mind many people are not aware of the amount of ongoing advocacy needed to be ensured equal rights for people with disabilities.
EVERETT DEIBLER: Right. Thanks, man.
GABE SMAGLIK: So keep that in mind.
EVERETT DEIBLER: So, the -- so, the -- so, the whole point of this is we know that you don't get this education in your History books and maybe your teacher is not even aware of this stuff. So it's
kind of unique in that way. And we also believe that people need to learn it, but as you learn it, know that not a whole lot of people know. So, that being said, let's move on to -- let's look at
common reactions to people with disability or what society in America has -- really, how they reacted to people with disabilities. Well, a lot of people focus on what people with disabilities aren't
able to do or can't do. I know that happens to me a lot. People assume that I'm unable to do something when I know I can or it is not where I'd feel with people with disabilities or they could ignore
us, that happens, too, or they feel bad for the fact that we have disabilities and to be honest, I feel pretty awesome, I mean...
GABE SMAGLIK: Yeah.
EVERETT DEIBLER: ...Gabe is getting ready to go to college to study what?
GABE SMAGLIK: Human Services.
EVERETT DEIBLER: Yeah, and you know, and I guess I'm old compared to Gabe. I'm -- oh, well, I guess I'm an old fart, yeah. And I'm actually getting prepared -- like preparing to get married and do all
that happy adult stuff. So, yeah, our lives are great and we're really doing a great job to go achieve our goals, but we're aware that this is what -- how people commonly react to people with
disabilities so know that as you're learning this stuff, this is the reality of what we face. So, looking at the History of Independent Living Movement, how did we get where we are? We didn't always
have the rights we do today and I think that a lot of times because we are young, we don't really understand why or how we're able to do things like get a job, have access to education, to being able
to go to school, things like that and to have the ability to even get in to places in the public. So let's take a look back.
GABE SMAGLIK: Rise of Institutions. They've been -- rise of institutions become common in the 1800s. Back in -- well, if you look back in further, back in the 1500s, people with disabilities were
considered possessed by demons, even tortured was the only way to -- I won't go into details there.
EVERETT DEIBLER: Yeah.
GABE SMAGLIK: But it was a pretty horrible past and which where would you rather live? I would rather live independently than in this order here, like an institution or a nursing home, that's my
EVERETT DEIBLER: So if you -- if you look at some of these pictures that are coming across the screen, Gabe talked about this is not where he wanted to live and the reality is I know it's really,
really tough for people to understand, but people with disabilities back in history were put away from society, they were locked away in these places. And some of these pictures we're showing you are
pretty graphic. The picture on the right there is seeing someone that's being tied down...
EVERETT DEIBLER: ...to a bench and there's some people that aren't really wearing clothes. That's just pretty alarming considering they're human beings and they're in an area of where they live. You can
GABE SMAGLIK: Whoa.
see that we are pretty fortunate for what we have today and the reality is that if Gabe and I or anyone with a disability including people with read disabilities, learn disabilities, use the
wheelchairs, they have bipolar, chances are you live in one of these places and that is simply uncool, yeah. So, Gabe, you want to explain these pictures? They kind of look at the disability rights
movement and how it kind of got started.
GABE SMAGLIK: The disability rights movement started by the African-American's and the women's...
EVERETT DEIBLER: Around the same time...
GABE SMAGLIK: Around the same time.
EVERETT DEIBLER: Around the same time.
GABE SMAGLIK: ...these other rights movement. The top right picture is a person in a wheelchair saying, "I can't even get behind the Greyhound. I can't even get in back of the bus."
EVERETT DEIBLER: All right. So, people with disabilities have been fighting for their rights for a long, long time, and probably it's because of where they come from and where they live. I mean,
imagine being locked away, being not able to go to school and be out in the -- in the community and doing the things you'd like to do like maybe playing video games or go to the mall or going on the
internet, hello, all right, so, yeah. Now, let us look at this. Gabe already kind of mentioned this, when and why did the movement begin, it began in the 1960s around the African-American Civil
Rights Movement and Women's Right Movement. And really, it was the struggle for full citizenship because war vets were coming home from the Vietnam war and maybe they were now amputees, missing a leg
or an arm, things like that, maybe they had a head injury, maybe they were now paralyzed, and when they were coming home to an America that was not accessible to people with disabilities. They were
coming home unable to have their jobs, they were unable to go back and maybe live in their homes. And really, they were fighting to be a part of public life and to have independence and to be able to
make their own choices. And along with that, we had people who were living in institutions and were separated from society. So, eventually, they, you know, they were hearing about these great stuffs
about people coming together to make a difference and they wanted to improve the lives of themselves, people with disabilities. And they thought if we come together and we use our anger of being
locked away to make a difference and to make change, maybe we can get out of here and maybe we can start living in the community and have access to stuff that we deserve as human beings. The lady on
the top right picture that you see there with the van and a news camera and all that stuff is Judy Heumann. I would encourage you to Google her when you get a chance, find out who she is, she's
pretty awesome. The guy below her is that Roberts? We're going to talk about him in just a second. And the guy with the crazy hat with the American flag there is Justin Dart and we will certainly
talk about him, too.
GABE SMAGLIK: The legend.
EVERETT DEIBLER: Yeah. He's a what?
EVERETT DEIBLER: A legend. Right. And you don't even know who he is. So, it's cool. There you go.
GABE SMAGLIK: A legend.
GABE SMAGLIK: Pioneers. Like Martin Luther King, Jr. of the Civil Rights Movement, there have been people that have paved the way for people with disabilities. Without these people -- without them,
we wouldn't be here where we are today.
EVERETT DEIBLER: Yeah. And again, I can't stress enough, we wouldn't have the access to buildings, to jobs, and just the public life in general, to be able to be who we are today and develop as people
as we are today.
GABE SMAGLIK: That is very true.
EVERETT DEIBLER: So, the guy on the left is Justin Dart, the guy with the crazy hat and again that's Ed Roberts down there. So, let's take a closer look at Justin Dart. And I know I can't see hands
that are being raised but I can almost guarantee that all of you at one time in your life probably took a Tylenol or Advil for a headache or a sore back or a sore foot, I don't know. Have you taken
GABE SMAGLIK: Oh, a tons of times.
EVERETT DEIBLER: A thousand times, all right. Cool. All right. And I can almost guarantee that most of you thoroughly enjoy the macaroni and cheese.
EVERETT DEIBLER: Probably. And I am almost a hundred percent certain that at a one point or another, you may have eaten leftovers from your mother or your family members that were in a plastic
GABE SMAGLIK: I enjoy it, too.
container that you had to heat up in the microwave. I'm almost certain of that, too. And why do I mention that with this guy's name Justin Dart up there on the screen and his picture, it's because
his family owned a company called Dart Industries. And Dart Industries was a pharmaceutical company that made things like pain killers like Tylenol and Advil. All right, that's one. Okay. His family
also made or had or brought stuff and Kraft Macaroni and Cheese, one of the most successful macaroni and cheese companies in our country or maybe in the world, I don't know how to look at the stats.
And then the other thing is that those containers that you typically put leftovers in, Justin Dart and his company were part of like innovating that and creating it. So, the reason why I bring all
this up is because it's money, money, out of the [inaudible] in the screen there, that's money. So, it's money. All right. And Justin Dart didn't just use his money for himself. He believed in trying
to help people and make a difference. And why people with disabilities? Because Justin Dart actually had polio himself, but I want to make certain that you know that Justin Dart didn't just work with
people with disabilities. He did start it for the civil rights movements of African-Americans and women, too. All right. So he gave his money to all the good causes but because he had so much money,
he was influential in politics and he was able to get the ADA through and passed with the help of advocates of other people. And that's why Justin Dart is known as...
EVERETT DEIBLER: The Father of the Americans with Disabilities Act.
GABE SMAGLIK: Great. And it's really, really strange that movement that -- we're talking about the Independent Living Movement has quite a few fathers, I'm not really sure why that is, but it's kind
of the reality that we face doing that stuff. The next guy is Ed Roberts and he's a really cool guy and yeah, very important to thing about Ed Roberts, he's one of the reasons that I have a job and
Gabe have been able to volunteer at ARCIL. So for us, he is a legend. Yeah.
GABE SMAGLIK: Okay.
EVERETT DEIBLER: Another legend and again, I know most of you don't know who he is. So, who is Ed and what is his story? Ed Roberts wanted to get a job just like any other person with a disability in
the community. He wanted the opportunity to get a job and be a part of the community so he went to an agency called the Office of Vocational Rehabilitation in the State of California. And one of the
important things to know about that is that OVR's goal, the goal of that agency is to get people with disabilities employed, all right? Get them jobs, help them to keep a job and all that stuff. And
he went there and they told him then that he was too disabled to work. Doesn't really make sense with the mission. But, then he's like, "You know, well, I'll try going to school." So when he applied
back in the '60s, maybe early '70s. I'm trying to remember this now as I sit here. But he applied to the University of Cal, Berkeley and they said they tried people with disabilities before and it
didn't work all that well. Well, so, he can't get a job and you can't go to school, what are you going to do? Well, Ed chose to fight it and actually got accepted in the University of Cal, Berkeley
and because of his medical needs, they decided that it will be best for him live in the nurse's office or the infirmary on the university's campus. And because Ed was so happy that he was able to get
into the school, he started to share it with his friends that also have disabilities, like, "Heck, you know, I'm going to school. I'm living here. This is great." And he invited all his friends and
they started accepting them and eventually there was a group of them living in like this infirmary, this nurse's office. And they were having crazy college parties, playing poker, having friends
over, all that stuff, all the stuff that normal college kids do. And the university was like, "We better make some changes or it's going to be tough. We need to do something." And so, they started to
make the campus more accessible and give Ed and his buddies a place to live and those buddies of Ed's became known as the...
GABE SMAGLIK: Rolling Quads.
EVERETT DEIBLER: ...Rolling Quads. Yeah. All right. So, pretty cool and again, for us, they're legendary people but once Ed got out of school, had his masters and did all that, he eventually became the
director of California's Office of Vocational Rehab. The same place that told him -- where we are -- the same place that told him, he would never be able to get a job. Talk about some irony, that's a
little crazy, but also, Ed said, and this is where our Center for Independent Living comes in, Ed also said, "You know what? It will be really awesome that people with disabilities could help people
with disabilities manage what they needed to be successful." Sounds like a noble idea and boom, a Center for Independent Living was born. And we'll talk about what Center for Independent Living are,
what kind of things they do, but no, it all centers around what Ed Roberts, the guy on the screen did, to create a place where people with disabilities go and get information from each other because
who better to know about what it's like to live with a disability than the people actually living with them.
GABE SMAGLIK: Oh, so, the one thing I would do is to research on Ed Roberts then go on Youtube. His videos that you see on Youtube are very empowering.
EVERETT DEIBLER: Awesome. You had that one? Yeah, I mean, definitely, all of you guys, go home, Google them, find out who they are. Yeah, and if you want to ask questions, ask us or ask Gabe.
EVERETT DEIBLER: Yeah. So, Gabe, you want to talk about what is a Center for Independent Living?
GABE SMAGLIK: Yeah.
GABE SMAGLIK: A Center for Independent Living is a -- also known as a CIL, is a disability resource center for all people who have any type -- excuse me -- any type of disability at any age. There are
18 CILs in Pennsylvania, every county has -- is covered by a CIL. CILs are based on consumer choice.
EVERETT DEIBLER: Awesome. So what does that really mean and if you look at these interesting facts as we'll get into that, but Gabe, what are some other interesting facts about CILs?
GABE SMAGLIK: Interesting facts about Center for Independent Living are at least 51% of the staff are people with disabilities, 51% of the board members are people with disabilities, consumers choose
the goals they want to work on.
EVERETT DEIBLER: And so what does that mean? All right. So, well, the other thing we didn't really mention is not we're on the sides or anything, was that Centers for Independent Living are non-profit
organizations. So, they have to have like a board of directors, people that help the CIL go out and make sure they maintain what they're supposed to do to keep doing well and helping the CIL to be
successful. All right. Makes sense? So, 51% of those people have to be people with disabilities and 51% of the staff that work there have to have disabilities. And I mean, we keep saying the word
consumer and consumers basically are...
GABE SMAGLIK: Us.
EVERETT DEIBLER: People with disabilities. Awesome. They're us. So the point is that consumer control, if you could see, 51% of people are people with disabilities, 51% of the board member are people
with disabilities and you're working for people with disabilities, thus, you have consumer control. It's a big word but really, it just means that we control what we are doing. So what are the four
core services of a CIL? And when I say core, that means that anywhere you go in the United States of America, there are a hundred and hundred Centers for Independent Living and they all will do these
four core services. It's written into law that way. The first one is information referral. That means, if you want to find out where do you go to look for employment, where do you go to look for
housing, where do you go to look for, you know, a place to -- I'm trying to think, like where is the best place to go mini golfing that might be accessible, you can call -- I don't know why I thought
of mini golf but I did, I'm really good at golfing. You can call and ask where those places are and a CIL is supposed to be a better CIL, actually, they're job is to find out that information for
you. So if they don't know the answer, they're going to be able to find where to look -- they're going to be able to look and find the information you're looking for. The other thing is peer support.
Since 51% of the employees are people with disabilities, chances are, they're going to come in contact with a person with a disability while you're there and say, you're having an issue at home, say,
you want to talk about, you know, a bad day you might've had with people about your disability and you want to talk to somebody, you can call in and you could talk to somebody and that's kind of
really cool. Advocacy, standing up for people with disabilities, speaking up individually, and to make changes in laws to make things better and more accessible for people with disabilities. And the
last is independent living skills. Let's say you want to learn how to prepare a meal, say you want to go on a date with somebody or you want to have somebody over for a date and you want to learn how
to make their favorite meal, you can call and learn that. You want to learn how to do laundry, you want to learn how to clean, you want to learn how to balance a checkbook, all those things, those
are things that you can learn from the independent living skills trainings that a CIL can offer. So it's really kind of cool and the only thing I want to say is that Ed Roberts helped create all of
this. So that's why he's so cool.
GABE SMAGLIK: Also, wherever county you're from, make sure you always do research on the CIL.
EVERETT DEIBLER: Yeah, and find out...
GABE SMAGLIK: Where is the CIL.
EVERETT DEIBLER: And where -- yes, where is it, and what else could they do because every CIL provide additional services based on their unique community.
GABE SMAGLIK: And they can also -- if you want to create a support group, they can try to help you...
EVERETT DEIBLER: Yes.
GABE SMAGLIK: ...resources in creating a support group.
EVERETT DEIBLER: Absolutely, so, yes. Yeah. Really, good info. All right. Cool. And you want to explain this picture?
GABE SMAGLIK: The ADA, Americans with Disabilities Act was signed July 26th, 1990 by George Bush, Sr.
EVERETT DEIBLER: And the guy next to him is Justin Dart, the guy we had -- we talked about. And this is really cool. And why are we bringing this up? It's because we know that majority of the youth
that we're -- that are -- that are -- we're talking to right now, us, right? Were born and I guess, what we call the ADA Generation. Gabe, when were you born?
GABE SMAGLIK: 1991.
EVERETT DEIBLER: And what year was the ADA signed?
GABE SMAGLIK: 1990.
EVERETT DEIBLER: Okay. So, Gabe doesn't have any idea nor do I about life before the ADA. And if you look at these pictures, Gabe, you kind of want to explain some of these?
GABE SMAGLIK: Because of the ADA has become a law or an act.
EVERETT DEIBLER: Yeah, we can roll, we can roll now.
GABE SMAGLIK: Well, yes, thank you. We now have accessible stuff. You wouldn't have seen this years ago. Like curb cuts, accessible vehicles and look how much technology has evolved for people with
disabilities in the community. It has changed.
EVERETT DEIBLER: Yup. Absolutely. And you know, I know that a lot of you have seen those curb cuts at the end of the sidewalks with the little rumble strips on them and things like that. We may have
seen sliding doors with the buttons to have access to things, those are all because of the ADA and the reality is I don't know life before that and that's kind of why we're telling you about the
histories that you as a youth with a disability understand how awesome it is that we're able to do things like...
GABE SMAGLIK: Go to college, employed.
EVERETT DEIBLER: And get a job. Right. Go to college and be employed. And it's -- they deal, and we're able to do it because of laws like this and because of what people like Justin Dart and Ed
Roberts did and really, through the work of the Center for Independent Living and the advocacy that they give. So why is this so important to you? It's really, really awesome to learn our history. I
know for us -- for us, it's really like empowering and awesome to know that other people paved the way for me to be successful. And we really need to be not taking things for granted and know that we
are lucky to have what we do as youth in the year of 2013. And we need to be able to see life from a different point of view because accepting others is necessary to grow as a person. So, you see,
Gabe and I, we're two different people but we're friends and we hangout and...
EVERETT DEIBLER: ...it's really, really cool to -- and it's really, really cool to be able to understand each other because it's going to help you grow as the person that you are.
GABE SMAGLIK: Yeah.
GABE SMAGLIK: And also, if a CIL can't answer your question, they have resources that will lead you to [inaudible] to your question. And they will call you back and find out that question for you.
EVERETT DEIBLER: Yeah, absolutely. And those are the things, help you grow and improve your life as you see fit. So, this -- again, this webinar is not being shot live but the good news is that Gabe
is there now, live, ready to answer your questions to anything you want to know about this history stuff. You maybe sitting there going on, "Oh, this is -- oh, I don't know why I learned this." But
really, you have to be thankful for where you are and understand that that history, the stuff we talked about today is the reason why we're able to be in classrooms, able to get jobs and be a part of
life. And the other thing is that we wanted you to learn about a Center for Independent Living and what it offers. And we encourage you to find it in your area and find out what they could do for you
and find out what they do that you should need to them because you never know what you might find. So with that being said, I'm going to go, I'm going to turn to Michael so that he can like cut this
little recording off and all that lovely stuff. And thanks, guys.
GABE SMAGLIK: I have a question for you Everett.
EVERETT DEIBLER: Oh, no.
GABE SMAGLIK: Oh.
EVERETT DEIBLER: What? What?
GABE SMAGLIK: Did you learn about this, about their history in high school?
EVERETT DEIBLER: No.
GABE SMAGLIK: Because I didn't either.
EVERETT DEIBLER: Yeah, we just talked to people about it, isn't that awesome?
EVERETT DEIBLER: That's cool. All right, guys. We're going to stop this.